Glossary

Access

Ability or means needed to read, write, modify, or communicate data/information.

Confidentiality Agreement/Non-Disclosure Agreement:

A contract between at least two parties that outlines confidential material, knowledge, or information that the parties wish to share with one another for certain purposes, but wish to restrict access to by third parties. It is a contract through which the parties agree not to further disclose information covered by the agreement.

Data Use Agreement (DUA)

a legally binding contract that governs the transfer and use of non-public or restricted-use data between entities, typically outlining the terms, limitations, and obligations for both the data provider and recipient, especially when dealing with sensitive information like Protected Health Information (PHI).

Electronic Health Records (EHR)

Digital versions of patients' paper charts and can be real-time, patient-centered records. They make many different types of clinical and patient information available instantly, "whenever and wherever it is needed". EHRs collate everything about a patient's health including medical history, diagnoses, medications, immunization dates, allergies, radiology images, and laboratory test results.

Health Information Exchange (HIE)

A secure, electronic system that allows healthcare providers to share patient medical information electronically. This enables providers to access a patient's medical history, allergies, medications, and other vital information, regardless of where the patient received care. The goal is to improve the speed, quality, safety, and cost of patient care.

Hybrid Entity

An organization that under HIPAA provides both covered and noncovered functions.

Preventive Measures

Actions and interventions designed to prevent disease, promote health, and prolong life within the population as a whole, encompassing strategies from individual-level care to broader community and societal changes. These measures aim to either stop diseases from occurring, detect them early for prompt intervention, or manage their consequences to minimize harm and improve well-being.

Public Health Authorities (PHA)

Government entities and agencies at various levels (federal, state, local, and Ttribal) legally empowered to protect and promote the health of the population within a specific jurisdiction.

Access Control

Cohesive set of procedures designed to ensure that anyone with access to identifiable public health data:

  • Is the person he or she claims to be (authentication)?
  • Has a verified public health need to have access to the data in question?
  • Has been authorized to access the data and is doing so from an authorized place using an authorized process?

Data Sharing

Granting certain individuals or organizations access to data that contain personally identifiable information with the understanding that personally identifiable or potentially identifiable data cannot be re-released further unless a special data-sharing agreement governs the use and rerelease of the data and is agreed upon by the receiving program and the data provider(s).

Electronic Case Reporting (eCR)

The automated process of exchanging case report information for reportable conditions between healthcare facilities and public health authorities. Reportable conditions are diseases or other conditions that healthcare providers, laboratories, or other entities are legally required to report to public health authorities.

Electronic Laboratory Reporting (ELR)

Transmission of digital laboratory reports via a standards-based message format from laboratories to healthcare and public health partners. EL automates the reporting process by translating information into an electronic message that can be automatically sent and processed. ELR is important because it provides an essential tool in response to outbreaks.

Health Insurance Portability and Accountability Act (HIPAA)

A federal law (1996) that sets national standards for protecting sensitive patient health information. HIPAA applies to health care providers, health plans, and health care clearinghouses — known collectively as covered entities — and, in certain cases, to their business associates.

Memorandum of Understanding (MOU)

A non-binding agreement between two or more parties that outlines their intentions and goals for a potential future agreement or collaboration.

Privacy

The state of being undisturbed or free from public attention. The rules, regulations, and laws governing privacy and access to health-related information vary and change frequently.

Public Health Exception

Under HIPAA (45 CFR §164.512(b)) public health authorities are explicitly recognized as needing access to PHI to protect the health of communities.

Confidentiality

The protection of personally identifiable information (PII) and other identifiable information collected under an assurance that restricts its sharing. This includes all patient information, records, and discussions related to a person or establishment.

Data Sharing Agreement (DSA)

Mechanism by which a data requestor and data provider can define the terms of data access that can be granted to requestors.

Electronic Health Information (EHI)

An individual’s health data that is collected, maintained and transmitted electronically by healthcare providers and/or systems (AHIMA, 2021; ONC, 2022), including some data held by PHAs, such as immunization records, surveillance data, and vital records.

Encryption

Manipulation or encoding of information so that only parties intended to view the information can do so. The most commonly available encryption systems involve public key and symmetric key cryptography. In general, for both public and symmetric systems, the larger the key, the more robust the protection.

HIPAA Privacy Rule

A set of national standards (2000) for when and how protected health information (PHI) can be used and disclosed.

Personally Identifiable Information (PII)

As defined by National Institute of Standards and Technology Special Publication 800-122, Guide to Protecting the Confidentiality of Personally Identifiable Information (PII), available at http://csrc.nist.gov/publications/: ”Any information about an individual maintained by an agency, including (1) any information that can be used to distinguish or trace an individual‘s identity, such as name, social security number, date and place of birth, mother‘s maiden name, or biometric records; and (2) any other information that is linked or linkable to an individual, such as medical, educational, financial, and employment information.“

Public Data Use

Includes the variety of ways public health data may be used to achieve public health goals/purposes. A principal public health data use at state and federal levels is for epidemiologic monitoring of trends in disease incidence and outcomes. This includes collection of data and evaluation of the collection system, as well as the dissemination of aggregate trends in incidence and prevalence by demographic, geographic, and behavioral risk characteristics to assist the formulation of public health policy and direct intervention programs. Public health data uses may also include data used to initiate or provide treatment and prevention services.

Public Health Surveillance

The ongoing, systematic collection, management, analysis, and interpretation of health-related data followed by their dissemination to those who need to know in order to: 1) monitor populations to detect unusual instances or patterns of disease, toxic exposure, or injury; 2) act to prevent or control these threats; and 3) intervene to promote and improve health. The term applies to both electronic and paper-based systems.